About the Session
Healthcare systems now recognize that optimal care may require greater interaction with community resources. To associate health outcomes with utilization across multiple settings, linked data—derived across sectors and systems and compiled into comprehensive, individual-level, longitudinal records—could help identify relevant patient-specific interactions and outcomes.
The Childhood Obesity Data Initiative’s goal is to determine how to build a secure, cross-sector, longitudinal patient record to better assess health outcomes and enable patient-centered outcomes and comparative-effectiveness research. This Centers for Disease Control and Prevention-led project is developing tools for data linkage and de-duplication services to study patient outcomes from childhood obesity interventions and prevention strategies. This seminar will highlight the processes and lessons learned regarding: governance, technical and operational constraints when sharing data across sectors; roles and responsibilities of a trusted third party to preserve data security and privacy; minimum data elements required to identify the same child across organizations in a privacy preserving manner; a data model capable of leveraging clinical and community weight management program data across sectors; strategies for merging data from multiple interventions and settings; and a longitudinal patient record.
- Understand governance and technical challenges of bringing together clinical and community organizations to create an individual-level linked longitudinal record.
- Describe privacy preserving identity management processes for clinical-community data sharing and longitudinal records.